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Conversations: Personal Experiences on the Dementia Journey - Shared screen with speaker view
Scott Russell (he/him)
38:31
https://www.amazon.ca/Increase-your-Brainability-reduce-dementia/dp/019886034X/ref=sr_1_1?crid=3CVH3N44EY328&keywords=brainability&qid=1645132142&sprefix=brainability%2Caps%2C108&sr=8-1
amanuel melles
41:23
Thanks for the link, Scott.
Scott Russell (he/him)
45:53
https://www.amazon.ca/Rose-Grandma-Journey-Through-Alzheimers/dp/1736841084/
Krista Vandermeer
49:27
what a blessing!! thank you for all of your work. i am a care giver to my mom who is living in long term care home and is in the late stages of dementia. me and my family have been on a long journey with her dementa. parents were missionnaires in Indonesia for 13 years. my father a nurse and mother teacher. Thanks For Hosting this workshop.
Scott Russell (he/him)
50:19
https://www.amazon.ca/DOWN-RABBIT-HOLE-Journey-Dementia-ebook/dp/B07KYHS6LF/
Krista Vandermeer
50:30
it is very difficult and I appreciate support on mental illness.
amanuel melles
51:58
Thanks for the courage to not only share your stories but the love, care and compassion with which you try to make a difference in the lives of dear ones struggling with dementia. I volunteer in taking care of an elder suffering from dementia in the community. Hope. Love. Tears. Smiles.
amanuel melles
54:12
Thanks Veronika
Catherine Everson
54:49
Transparency is well respected and extremely helpful Veronika thank you.
Scott Russell (he/him)
55:59
https://valenecampbell.com/grandmas-memory-box/
Brenda Alexander
56:50
Thank you Veronica. My journey with my husband has just begun. In addition he is hard of hearing.
Krista Vandermeer
58:01
amazing!!
Krista Vandermeer
58:09
thank you!
amanuel melles
01:04:55
Thanks Veronika. Sending you positive vibes.
Gerard Menezes
01:04:58
For Dr. Larry Chambers- Are there any physical symptoms such as headaches/migraines/a feeling of pressure in the brain/head for some who experience Dementia? Thank you!
amanuel melles
01:07:37
So very true, Valene.
Sarah Pettersen
01:09:52
Beatiful
Alzheimer Society of Toronto
01:11:06
Christiana EgiA Rose for Grandma: A Journey Through Alzheimer'shttps://www.youtube.com/watch?v=9u0rGuM94q8https://twitter.com/christiana_egi?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5Eauthorhttps://www.instagram.com/christiana.egi/https://www.cegisrose.com/childrens-author-christiana-egi/
Alzheimer Society of Toronto
01:13:04
Valene CampbellGrandma’s Memory Boxhello@valenecampbell.comhttps://www.facebook.com/AuthorValeneCampbell/https://www.instagram.com/valenecampbell_/valenecampbell.com
Alzheimer Society of Toronto
01:13:45
Veronika ZyssDOWN THE RABBIT HOLE: A Journey Through End Stage Dementiahttps://www.facebook.com/veronika.zysshttps://twitter.com/vzysswww.amazon.ca/DOWN-RABBIT-HOLE-Journey-Dementia/dp/1790450896/ref=sr_1_3?crid=3J9BVNIVBINDZ&keywords=veronika+zyss&qid=1642172250&s=books&sprefix=veronika+zyss%2Cstripbooks%2C58&sr=1-3
Alzheimer Society of Toronto
01:14:35
Larry Chambers https://www.amazon.ca/Increase-your-Brainability-Reduce-Dementia-ebook/dp/B094W7LXVT
Alzheimer Society of Toronto
01:15:29
Keep those questions coming! Post your question in the Q&A and note which panelist
Nancy Reyes
01:23:16
www.alz.to
amanuel melles
01:29:26
https://www.alexislodge.com/
Sarah Pettersen
01:31:21
Amazing!
Alzheimer Society of Toronto
01:32:10
www.alz.to
Alzheimer Society of Toronto
01:32:55
scott@alz.to
Cheryll Kwok
01:35:44
excellent points Christiana
Scott Russell (he/him)
01:42:08
Training currently offered for care partners: https://alz.to/event/carers-program-for-spouse-partner-8-sessions-online/
Scott Russell (he/him)
01:43:17
Also available: U-First!® for Care Partners in April: https://alz.to/event/u-first-for-care-partners-2/
Catherine Everson
01:43:34
There are communities who have Dementia awareness in their businesses and deem their communities "Dementia Friendly" ie: Bobcagen
Sarah Pettersen
01:44:40
That's excellent!
Cheryll Kwok
01:45:14
Great point Larry...I will talk to my mpp
Catherine Everson
01:45:49
Thank you
Catherine Everson
01:48:12
Courageous Veronika
Steven Pedlow
01:48:13
Thank you for sharing your story Veronika
amanuel melles
01:49:49
Amazing
Sarah Pettersen
01:50:32
So helpful to hear those points, Veronika. Thank you for your honesty.
Nancy Reyes
01:50:38
Thank you for your honesty Veronika!
Dina Boone
01:50:52
Veronica, you are very strong and courageous. You make the best decision you can with the information you have at the time. Sharing your story will help many. Thank you.
Brenda Alexander
01:53:23
Valene, thanks for your suggestions.
amanuel melles
01:54:53
@Dina - indeed. All the stories shared this afternoon are gifts, painful as some are, to all of us. Keeps our resolve to be caring and compassionate to those around us that need support.
Sarah Pettersen
01:55:04
So true.
Steven Pedlow
01:56:10
Thank you to everyone!
Ann Ulusoy
01:56:10
Thank you to all panelists, very helpful!
Brenda Alexander
01:56:10
The chat comments are valuable. are they available with the recording?
Nancy Reyes
01:56:11
Thank you!!!
Dina Boone
01:56:12
Absolutely agree Amanuel.
Cheryll Kwok
01:56:14
Thank you all.
Catherine Everson
01:56:23
this was wonderful and helpful very valuable, Thank you.
Nancy Reyes
01:56:24
care and love...always!
Pooja Sinha
01:56:29
Veronika, thank you for sharing in so much detail. Even though all Dementia is challenging.FTD is even more so - my relative had it as well. If I May say so, you did your best at that time with a lot going on and an overwhelming situation and you continue to do so by sharing your experiences with us.
Dina Boone
01:56:32
Thank you to everyone for sharing your stories and for your insights.
Nancy Reyes
01:56:34
be kind to yourselves too!!
Sarah Pettersen
01:56:37
Thank you so much for a wonderful presentation. I learned so much and want to get involved more in the changes you all suggested
Brenda Alexander
01:56:39
Thank you everyone.
Kari Quinn Humphrey
01:56:39
Thank you!
Scott Russell (he/him)
01:56:57
scott@alz.to
amanuel melles
01:57:08
Thanks Scott and panelists. This was amazing.
Alzheimer Society of Toronto
01:57:15
To keep informed of upcoming sessions and other programs and events at AST please sign-up for our monthly eNewsletter and visit our website at www.alz.to
Scott Russell (he/him)
01:57:19
awillis@alz.to
helen mittelman
01:57:26
Thank you very much!
Gal iaxminna
01:57:38
very informative that
amanuel melles
01:57:44
Scott and Christiana - I've sent you an email.
Catherine Everson
01:57:45
Thank you all for your shared information and stories!! Very valuable and hopeful!
Angela Golding
01:57:52
Thank you
Donald Baker
01:58:02
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